One Man’s Experience with Lyme Disease

One Man’s Experience with Lyme Disease


Announcer: The Centers
for Disease Control and Prevention present
Lyme Disease, One Man’s Experience John: My name is John. I got Lyme disease
last July of 2011. I was out in the woods
camping with my son, with the Boy Scouts, and
we’d been out there for a week and that’s
when I got it. You know being in scouting
and being an outdoors type of person I knew
quite a bit about it. I knew what the symptoms
were like and I knew it was a tickborne disease. And that it was something
that you definitely want to get checked out if
you see any symptoms. In the evenings when
we’d come in from the activities that we were
doing in the field, I felt an itch on my right
hip and didn’t think anything of it because
it just seemed like a mosquito bite, or some
other kind of a bite that would normally itch. And that was about Wednesday or Thursday that I noticed that. Later on I checked you
know for tick and didn’t see anything there, but
later on it presented itself a bit differently. Announcer: Early symptoms
of Lyme disease can include a red expanding
bull’seye-like rash, fevers, chills,
fatigue, headaches, muscle and joint aches,
swollen lymph nodes and facial paralysis on one or
both sides known as Bell’s palsy. John: Well I started
to feel ill probably, you know if I’d noticed
the itch on Wednesday, probably by Friday, I
started to feel just a little not quite myself. Still didn’t really
connect the two. By Saturday morning by the
time I had gotten home I was just feeling
lethargic, tired, a little achy. I’d gone to take a shower
after being out in the woods and, got out of the
shower and looked down at that same area and noticed
there was a bright red bull’s eye rash, and so I
knew there was something wrong at that point. Well, I went and visited
Dr. Heaton and Dr. Heaton took a look at the rash
and we talked about treatment possibilities. You know he calmed
me down a little bit, I was a little nervous
about the whole thing, given that I’d been bitten
by ticks before but had never seen a rash, and
this was the first time I did and so I was concerned
about some of the long term effects. Dr. Heaton: Every one of
us seems to know somebody that has dealt with Lyme
disease and some of those people have developed
complications that last longer than others. Some people are worried
about the long term side effects. Other people feel like,
man, I feel so awful, I have headaches,
I have a rash, I have body aches and
I can’t think at work, how am I going to get back
to work in the next two or three days because I have
an important thing to do in two days from now and
they want to be fixed right away. John: He told me that
it’s better to go ahead and treat it, that there
wasn’t a need at that moment to do a test given
how it was presenting and how it was feeling. He said a round of
doxycycline might be the best method to
help me out. The first couple of days
afterwards I was still kind of feeling achy. I missed one day of work
on Monday feeling kind of feverish and achy. But I was back at
work by Tuesday. By the next Saturday
I felt fantastic. I was back to my
old self again. Dr. Heaton: The good news
is the vast majority of people treated for
Lyme disease do very, very well, and I would
say that most people see resolution of some of
their symptoms within the first two or three days,
at least starting to. But it takes up to a few
weeks to see complete resolution of their
symptoms that they came into the office with. There is a lot out there
thanks to the internet in regards to Lyme disease
which is good and bad for doctors and for
patients I think. It’s so common that people
have had friends who have experiences with it, so
often by the time that they come into the office,
even if we haven’t made the diagnosis yet, they’re
already convinced they have it, they are already
concerned about certain things. In the area of the
Northeast especially and then also Wisconsin
and Minnesota area, highly endemic
areas for Lyme. Then you really ought to
be doing nightly checks especially during summer
months for ticks and so removing the ticks before
you go to bed that night. John: I think that you
know more and more, you hear about more and
more cases it’s just very important you educate
yourself about Lyme disease. Understand what the
symptoms are like and get yourself to a doctor just
as soon as you see or feel any of those symptoms so
they can check you out professionally. A couple of things you can
do to prevent Lyme disease is wear insect repellant
that’s got DEET in it and spray around the entrances
to your clothing. Check for ticks daily
after you’ve been out in the woods or near deer. You can also shower right
after and when you take a shower you can check,
check yourself over for ticks and call your doctor
if you have a fever or see a rash anywhere
on your body. Announcer: Learn more
at www.cdc.gov/lyme or www.cdc.gov/ticks

37 thoughts on “One Man’s Experience with Lyme Disease”

  1. Great CDC – Just like it said – ONE MAN'S EXPERIENCE. How about the other 100,000's whose quick acknowledgement by the doctor and quick medicines to resolve the bacteria quickly DID NOT HAPPEN. Love the music sounds – rings like the untruth.

  2. " If left untreated, infection can spread to joints, the heart, and the nervous system." So how long does the CDC say this late stage can last? You claim there is no chronic Lyme disease, right? Its time the CDC wakes up! (the CDC probably caused Lyme judging by its guilty acting stance and refusal to stand down on treating chronic Lyme patients). LYME HAS RAVAGED MY FAMILY!

  3. The moral of this story is GET TREATED RIGHT AWAY.

    This man got bit by the tick on Wednesday and he was JUST BEGINNING to feel symptoms (achy, lethargic) when he went to the doctor. By going on antibiotics right away, he was able to avoid the long term consequences.

    I believe that if he had waited just ONE MORE WEEK, he would be looking at SOME LEVEL of chronic lyme. It spreads that fast. By the time you feel a flu coming on, get to a doctor immediately!

  4. This is such a lie..easy to treat…yeah that's why there are thousands out there chronically I'll…with Lyme disease….and NO Drs normally don't even know much about this disease …let alone treat it early….that's why there are thousands suffering….way to CDC …another cover up!!

  5. Wrote a Lyme disease brochure with the help of 2 Lyme specialists. Will email a copy to anyone interested. God bless, Elaine

  6. At 2:29 Dr. Heaton uses the phrase "long-term side-effects." I wonder if Dr. Heaton will explain what is the difference between "effects" and "side-effects" in this context? My understanding is that "side-effects" normally refers to unintended consequences of medicine or treatment regimes; and the "effects" are equivalent to symptoms and damages caused by the disease directly. In choosing this language, is Dr. Heaton minimizing the existence of long-term effects of chronic and post-treatment lyme disease?  I do appreciate the preventive advice, but overall I don't feel like this video is a reliable source that I would recommend to my clients (I am a Forest Therapy Guide). 

  7. Yes? And I see no response to the questions asked here? What ABOUT the millions of others? Look to the right people at ALL the poor buggers this medical system failed! You are guilty…. everyone knows it now.

  8. John here is lucky.  His tick bite presented with classic symptoms including the bulls eye rash which only presents about 30% of the time.  The other symptoms are easily mistaken for a cold or flu and if there is no other evidence of an insect bite, diagnosis is difficult.  Recognized Lyme tests are at best inaccurate and if the disease successfully attacks the immune system are incapable of detecting the bacteria. Being a Spirochete, the bacteria are resistant to antibiotic treatment as they can burrow into muscle tissue and hide as well as change shape to increase their resistance.  Often Lyme disease is accompanied by co infections which could be viral, fungal or otherwise and can be more dangerous than the Lyme itself.  This is the reality of Lyme Disease.  It's difficult to diagnose in anything but the earliest stages and once past those early stages, very difficult and costly to treat as insurance companies generally will not pay for any treatment protocols past the initial stages.

  9. Warning: Results not typical. CDC, thanks so much for using our tax dollars to create a virtually useless video!

  10. I'm hearing from lots of people who have caught it early after getting a bite and or bullseye rash then treating with doxycycline thinking it's gone… And be completely well for 1 or 2 years… Only to notice unusual symptoms years later.   I think the standard early treatment needs to be doxycycline + tinidazole together.  It's just simply not worth the pain and suffering it causes after it becomes chronic.  Just my 2 cents after living with lyme for the past year.  Longer term followups need to be done on these patients deemed 'cured' from a round of doxycycline.  Doxycycline has been proven in studies to do well in the Borrelias growth phase killing 95% of the spirochetes.  But it can also induce the round body forms.  Tinidazole kills regardless if they are reproducing or not and can kill the round body cyst forms.   If I ever get Lyme again I'm not even wasting any time at all, I'm flying myself directly to a Lyme Literate Doctor.  

  11. Yes, first diagnose yourself with Lyme, make sure you have the bulls eye rash. If necessary, paint one on. Get there within a couple of days of your own diagnosis and hope like crazy the dumb doc agrees with you.

  12. I've heard about a new ultraviolet machine called the UVLRx that's being used for Lyme patients. It uses a fiber optic thread which is inserted directly into the vein and the treatment lasts for an hour, so all the blood is treated. Has anyone tried this?

  13. Thanks to the corruption at the highest levels and threats to pull medical licenses of docs in Oklahoma, I did not get diagnosed for over twenty years. Now I will never be rid of this! And now it’s so widespread you can’t deny it exists in all 50 states any longer! Thanks CDC! 🤬

  14. lyme has destroyed me in every way possible and robbed me of everything. i got it like 10 years ago and didnt find out till about 1 year ago. Once it spreads to your brain like it did for me your done. The depression is just killer

  15. I have had 5 of these deer ticks in last several months. Had one on butt that was sore and rrd but could not tell if bullseye as could not see. For about five weeks now my legs have been so weak and numb and am tired. The fatigue is so bad now plus i ache in legs and hips. Had low fever tonight but went away. I am usually full of energy. Can this go away on its own.

  16. Meant to make the masses believe there's hysteria with most people who claim to have this. What a pathetic joke.

  17. 2 massive lawsuits going on against CDC right now on the Lyme disease front. I really hope those brave people accomplish something big

  18. I spend a lot of time outdoors, especially in a provincial park that is a hotspot for Lyme. I’ve had two ticks on me already this summer.. I brushed them off and don’t think they bit me but I’m so paranoid 😫

  19. My husband was bit by a tick in the mid 80's, he was 15 years old. It was on the back of his neck. He remembers how hard it was to get it off his skin, it held on with everything it had. He later had the bulls eye rash, the swelling and pain to the touch and a lump the sized of an olive. He went to the doctor who didn't really treat him other than remove the lump. No antibiotics. Fast forward to today, he's now 52 years, he noticed he was losing feeling in tips of his fingers. It progressed to numbing his whole hands followed by extreme pain in joints. He was always athletic and healthy so we attributed this to the stress he was suffering on his job. We went to the Hospital and $12,000 later after taking every test you can imagine they diagnosed carpal tunnel syndrome. They put braces on his hands and sent him home. Later he heard a PSA on the radio talking about Lyme Disease, it's symptoms, etc. We started researching and discovered he was having a relapse from the Lyme (brought on by the stress). His cure was extreme high doses of CBD. He ordered a 1 oz bottle — online — 3000 mg (you can't get higher then 250 – 1000 mg anywhere around here) Within a few minutes he noticed some relief. It took another few months before he was almost completely pain free and had full use of all his limbs. "cbdmd" was where he bought it. He's back to normal and continues to take smaller doses daily.

  20. Thank you ( CDC ) CENTERS FOR DESTROYING CITIZENS !! Because of your lies my life is over as I know it And to think I ( HAD) the tick on me and with me to bring to drs along with a well defined ( Bullseye Rash ) 1986 I wouldn’t trust anything you say or do for the public
    Your intentions .. PURE EVIL
    ALERT 🚨 FAKE NEWS
    Oh and anyone with Lyme / co- Infections …. the government is taking our medical records and destroying them

  21. This video disgusts me. Lyme ruined my life. The CDC ruined my life. I was a child when I got Lyme. It’s not fair

  22. This is criminal! The majority of us never get a bullseye rash and go years deathly ill and either undiagnosed or misdiagnosed. This guy missed one day of work; wow! I missed years of my life. Now I’m reinfected. Of course my regular doctor refused to treat me and I’m once again having to travel out of state to get proper diagnosis and treatment. My stupid doctor told me Lyme Disease is rare, even though many people in my neighborhood have it. This is what they teach doctors in medical school. The CDC is about as crooked as it gets, playing with peoples lives like this. A lot of people are going to answer to their maker one day. That will be their turn to suffer.

  23. I never had the "bullseye," or at least in the areas I could see. However, after many tests and, finally, 12 drawn vials of blood and the Western Blot Test, it was confirmed I have Chronic Lyme with co-infections of Bartonella and Babesia. It has robbed me of everything, but I'm finally on a bit of an upswing due to a kind Naturopathic physician and my persistence in trying all kind of supplements and concoctions. I was even inspired to write and record a song that can be found here: https://youtu.be/qdmrYgWVZfk

    I live in the town next to Lyme, CT. I can't stand even driving through that beautiful town or looking across Long Island Sound at Plum Island, where this pandemic may very well have started. Be well.

  24. You freaking idiots. We need cure for this now. If its not treated right away it'll last a lifetime with current protocols.

  25. Too bad the CDC denies chronic Lyme disease and leaves many of us to suffer and slowly die. My disability was approved for chronic Lyme. Go ahead tell me it’s fake. You know how hard it is to get disability?! Thank god my judge looked at the medical records and evidence

  26. This video is misleading! I've lived with Chronic Lyme since 2011… I've lost my job, my ability to function in everyday life, I no longer drive, I'm in constant pain yet according to the CDC there is no such thing as Chronic Lyme. And tell me why physicians are in danger of losing their medical license if they treat someone for chronic Lyme.

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