Chronic Illness Makes Woman Amazing Contortionist | BORN DIFFERENT

Chronic Illness Makes Woman Amazing Contortionist | BORN DIFFERENT

SCARLET CHECKERS: I’ve been extra flexible for my whole life. So, I’ve always known
that there is something different about my body. SCARLET CHECKERS: I have a genetic condition
called Ehlers-Danlos syndrome. The type that I have is type 3 hypermobility. SCARLET CHECKERS: It’s a collagen disorder;
it affects all the connective tissue in my body. It makes all of the joints and the ligaments
and the muscles and skin very loose and stretchy. So, I can do things like this. SCARLET CHECKERS: So, growing up I didn’t
know that I had a genetic condition. I just thought I was naturally very flexible. I would
like sit in strange positions at the dinner table, because it was what was most comfortable
for me. My step mom would yell at me, but instead of like ‘elbows off the table,’
it was more like, ‘get your feet off the table’. Because I’d just like sit with
my leg. I don’t know, it’s, like I’m comfortable in strange positions. Comfortable
in strange positions, by Scarlet Checkers, those are my memoirs. Someday I’ll write
an autobiography. SCARLET CHECKERS: Pretty much anything that can happen to your body, that’s painful
or uncomfortable or inconvenient, EDS can cause it. SCARLET CHECKERS: From just walking around
town, like if I just step wrong, I could just snap my ankle out of place. SCARLET CHECKERS: I actually try my best to
raise awareness for EDS because it’s considered an invisible disease. SCARLET CHECKERS: I was just diagnosed this
past year. It was just, it’s very hard to get a diagnosis because a lot of doctors don’t
know what it is, because it’s so different and manifests differently in every person
and there is no cure for it at all. SCARLET CHECKERS: If you guys don’t know, the reason that I’m a contortionist is because I have a genetic condition: type-3 Ehlers-Danlos syndrome. SCARLET CHECKERS: I remember being really
into the circus for most of my life. I remember the first time I saw a circus and I was always
really into the animals and the clowns and the acrobats, literally everything about the
circus; just drew me right in. SCARLET CHECKERS: About two years ago, I started performing full time. I do clowning, contortion
and side show. I’m currently in a small variety show troop right now called ‘The
Birthday Party’. And it’s four of us, four girls, three clowns and an alien. OLIVE-IT THEE CLOWNE: Scarlet is really inspiring
because she’s got this crazy disease and uses it to her advantage. Which is really,
it’s really awesome; super impressive. SCARLET CHECKERS: And I’m going to attempt to touch those two body parts together. If
I can do it, I get a point. If I can’t do it, all of you get a point. Got it? SCARLET CHECKERS: That is the contortion game,
I’m still undefeated and now I’m about to see another weird body trick. SCARLET CHECKERS: I tend to get some backlash
from the EDS communities sometimes because they think that I’m setting a bad example
for other people with EDS. I’m going to be confined to a wheelchair within the next
ten years probably. But it happens. I do use a wheelchair every once in a while. Some days
I just can’t do anything with my body. I would really like the EDS community to appreciate
that we’re all different. SCARLET CHECKERS: So, this is more than 90 degrees, would you confirm that? Can you confirm…
LADY: Yes. SCARLET CHECKERS: Yeah, thank you. More than
90 degrees? That’s disgusting. SCARLET CHECKERS: There is a safe way to contort while also having EDS and that really is just
being aware of your own body and what your own limits are and listening to your body
when it tells you ‘No, that’s not a thing you can do.’ SCARLET CHECKERS: I should have at least loosened
the corset. SCARLET CHECKERS: My career goals really
are very short term. I do want to enjoy what I’m doing and not ruin my body. SCARLET CHECKERS: I love everything about
this. SCARLET CHECKERS: I really enjoy performing, I really enjoy contortion and I really enjoy
making people laugh.

100 thoughts on “Chronic Illness Makes Woman Amazing Contortionist | BORN DIFFERENT”

  1. Mines not as severe as hers but I also have hyper mobility and it's so incredibly painful sometimes. She's handling her chronic illness so well! I wanted to be a contortionist when I was younger but for me it was too painful

  2. I can do some of the things she can but I can’t even do a handstand SOo.
    And same I sit down weird. Some people ask me how and they try it and say it’s uncomfortable, but they can do it. I guess I just got used to it. I get in trouble but now I don’t because the Teacher just don’t care anymore

  3. Towards the beginning when she said “so I can do things like this” I swore she was going to stretch her neck. 😱

  4. I know some poeple like this
    There is 2 girls at my school like this
    How do I know?
    Well I see then pulling the skin
    And their leg is behind them in gym class

  5. I love Scarlet!!! I've been following her on Instagram for four years.

  6. I have type 1 EDS, and I’m a acrobatics. But I do have a lot of limits, especially with my leg joints. I’m currently eleven but EDS did not limit all flexibility. I still can do splits, expect my left leg. I was born with EDS and I haven’t find out until a few weeks ago. I can touch my feet to my head, and certain stretches would hurt my leg joints, but I wouldn’t feel numb until the next day.

  7. As someone with HEDS this worries me… Here’s to hoping she doesn’t end up with degenerative joint disease from all of the strain on her joints.

  8. I have type 3 EDS and it was kind of fun when I was young but now I am 45 and have to use wheelchair and can’t walk at all unaided. The pain some days is unbearable

  9. I have very severe EDS and I can dislocate both my shoulders by just raising my arms up. Each EDS'er has their own quirks and they are all different. If i did any kind of those contortions I would probably die haha.

  10. As someone with Eds its incredibly hard to watch someone injure themselves further. The reality of this condition is living in constant pain, with limited mobility, and a range of other symptoms that make a normal life hard to obtain without constant medication and physical therapy.

  11. I have hEDS previously known as type 3. The thing is I was naturally good at gymnastics and stuff but we didn’t know about EDS at the time. I am 24 and the trouble I have now because of all the stuff I did is not good. There is a reason why Drs who know what the Ehlers Danlos Syndromes are tell us to not do our party tricks. My mum was the same and is like a little old woman too because of all the tricks she did. It’s not worth it especially if you know.

  12. I have EDS type III and have a similar story. I wasn't diagnosed until my mid-20s and honestly, all those years of doing these so-called "party tricks" really took it's toll on my body. The doctor that diagnosed me even asked if I was a dancer or gymnast as a kid, because our flexibility makes us good at those kinds of things, but as we get older it really damages our joints. I was told by the doctor that diagnosed me that at 26 my joints were actually of someone in their 60s. Chronic pain and arthritis are common, as well as a whole host of other conditions associated with defective connective tissue. From organ failure, to IBS, to respiratory issues, sleep apnea, frequent dislocations, extreme high risk of injury, etc. I honestly worry for this girl and what she is doing to her body! Almost all medical professionals will advise not to "show off" what we can do, because of the damage it causes. I've had to learn through PT that even standing certain ways or stretching in the morning has to be done with extreme caution. I'm always thinking about where my joints are and if I am hyperextending, because as she says, we often find ourselves sitting in weird positions and don't realize it. I am disabled at 27, I have a handicap placard for days when I have flare-ups. Many people with EDS are wheelchair bound or have to use other mobility devices. I honestly wouldn't wish this disease on anyone and I hate how the media glorifies it.

  13. Using the contortion show for awareness doesn't help the rest of us that are disabled. I'm glad you are doing fine, but it's not like this for us as we age or degrade. I respect your positivity, but the difference is how people will get mixed messages, not JUST your limits being pushed.

  14. Don’t think I didn’t notice the Iron Maiden “beast over hammersmith” in the background at 3:03 I survived of that dvd as a kid lmao

  15. I have hyper mobility but not as bad I've had surgery in August because I get bad knees from it and I have major surgery soon

  16. This is awesome! I wish I had started with gymnastics when I was younger like I wanted to but it wasn't available in my area. I always thought I was just double jointed then finally at 28 I realized it was EDS, keep doing your thing and raising awareness!

Leave a Reply

Your email address will not be published. Required fields are marked *